Chief Marketing and Communications Officer
Company: Homeword
Location: Washington
Posted on: October 16, 2024
Job Description:
Chief Marketing and Communications OfficerThe EveryLife
Foundation for Rare Diseases is seeking a Chief of Marketing and
Communications Officer (CMCO) to join its team.The EveryLife
Foundation for Rare Diseases (EveryLife Foundation) is a
science-based nonprofit, nonpartisan advocacy organization
dedicated to bringing treatments to over 30 million Americans with
rare diseases. The Foundation works with patient advocates,
lawmakers, industry, academic scientists, Food and Drug
Administration (FDA), and National Institutes of Health (NIH) to
advance the equitable development of and access to lifesaving
diagnoses, treatments, and cures.The CMCO serves as principal
advisor charged with executing comprehensive marketing and
communications strategies to promote and amplify the EveryLife
Foundation for Rare Diseases' brand across platforms. The CMCO will
lead all communications externally, oversee Foundation's marketing
operations, and ensure timely and consistent internal communication
to create awareness of plans and initiatives across the
organization. The CMCO will work collaboratively with leadership
and other key stakeholders in setting the vision for and leading
the marketing and communications team, including media and public
relations, brand and creative, mission materials, digital, social,
and web marketing, lead generation and acquisition, and strategic
communications. This person will also collaborate closely with the
CEO and executive team to develop, execute, and evaluate the
organization's strategic vision.This position may be a fully remote
position, not based in the Washington, D.C. office.Areas of
Responsibility
- Help shape Foundation's overall organizational strategy and
message, and incorporate communications and marketing into serving
Foundation's strategic objectives;
- Work with leadership to develop public relations and
communication goals for the organization and to ensure Foundation's
mission is fulfilled through programs and long-term strategic
planning;
- Develop and execute a crisis communication plan;
- Create marketing/public relations strategy that will allow
EveryLife to cultivate and enhance meaningful relationships with
targeted, high-level external audiences, including the media and
key influencers;
- Develop communications message maps, issue pillars, and
communications positioning to drive issue and brand awareness;
- Own Foundation's brand, organizational voice, and visual
identity. Define org-wide messaging, develop tailored narratives
for specific audiences, and provide guidance and oversight to
ensure consistency with Foundation's core messaging across a range
of outward-facing materials;
- Identify challenges and emerging communications issues and
develop and implement communications strategies for advancing
policy goals with key decision-makers;
- Collaborate with executive leadership team to develop
strategies, including op-eds and trade media placements, reflecting
EveryLife's position as thought leaders in the rare disease
community;
- Develop digital strategy, including SEO, to drive lead
generation and attract new program participants, supporters,
donors, and partners;
- Provide ongoing assessment and evaluation of public relations
and communications strategies to ensure that goals are being
met;
- Work with executive leadership team to prioritize media
opportunities, and prepare talking points, speeches, presentations,
and other supporting material as needed;
- Ensure that policy objectives of the Foundation are presented
in an honest and clear manner to the public to drive support for
various forms of activation;
- Develop and execute an earned media strategy;
- Serve as a spokesperson and lead point person on media
interactions that help promote and/or impact EveryLife, including
crisis management;
- Work to develop other spokespeople for the organization
including staff, board members, and patient advocates by providing
media training and talking points;
- Craft and maintain a compelling narrative that effectively
communicates Foundation's story and impact;
- Expand, implement, maintain, and oversee the voice and brand of
the Foundation;
- Lead marketing of all events to drive attendance by patient
advocates, KOLs, Members of Congress, Congressional staff, and
other members of the rare disease community;
- Oversee Foundation's website and strategy to drive traffic to
the Foundation's website;
- Oversee the social media strategy for the Foundation and ensure
an active presence on multiple platforms to increase brand
awareness, engagement, and conversations;
- Work with EveryLife staff to develop content and language for
our website and other materials as needed;
- Conceptualize cause marketing campaigns and sponsorship
activations that align with Foundation's mission and resonate with
audiences;
- Oversee consistent, high-quality messaging across all external
communications vehicles;
- Oversee segmented email campaigns, website, social media, and
digital initiatives to educate and engage audiences;
- Provide support in the crafting and editing of e-mails,
newsletters, blog posts, action alerts, and marketing
materials;
- Optimize SEO strategies and develop strategies for Google ad
grants;
- Train, support, and supervise Communications team members;
and
- Other duties as necessary.Occasional travel, weekend, and
evening work may be required.Skills/Experience
- Bachelor's degree, with at least ten years of related
experience;
- Successful record leading strategic messaging (strategic
marketing, strategic communications, strategic advocacy, etc.)
required, healthcare policy experience preferred;
- Senior leadership and management experience required;
- Experience with use of analytics and data, especially in
marketing;
- Proven ability to manage multiple projects simultaneously with
established deadlines; and
- Excellent communication skills including the ability to draft,
copy edit, and speak publicly.This is a full-time, direct-hire
position. The salary for this position is commensurate with
experience, ranging from $190,000 - $210,000 if located in the
Washington, D.C. area, and $183,000 - $203,000 if outside a
commutable distance. The benefits package includes health, vision,
and dental insurance, FSA, wellness reimbursement, cellphone
stipend, WIFI stipend, 401k 6% match, professional development, and
generous paid leave.How to ApplyTo apply, please send a current
resume, cover letter, and writing sample to
tkapps@turnkeyforgood.com with "EveryLife Foundation for Rare
Diseases Chief Marketing and Communications Officer" in the subject
headline.We empower the rare disease patient community to advocate
for impactful, science-driven legislation and policy that advances
the equitable development of and access to lifesaving diagnoses,
treatments, and cures.Why Work For Us?Our friendly and passionate
team works every day to improve the lives of the more than 30
million Americans suffering from one or more of the over 10,000
known rare diseases. We do this by educating and activating the
patient community to ensure they are heard by policy makers in
government and the healthcare industry. The EveryLife Foundation's
Culture of Caring encourages team members to care about one
another, care about their work and care about the patient
community.
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Keywords: Homeword, Annandale , Chief Marketing and Communications Officer, Executive , Washington, Virginia
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